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Steve Gleason


American
March 19, 1977
Athlete
A terminal diagnosis can really mess with your head. Honestly, it makes you want to run away to the moon. Many ALS patients want to fade away quietly. This was not for me.
Steve Gleason
Tags: You Me Really
To cure ALS medically is not economical. The realities are that it's difficult to find funding for research for a medical cure. I believe in developing technology as opposed to medical research. Technology can be economical.
Steve Gleason
I have moments where I miss my old self. But I think anyone can get caught up in what we used to have. But at the same time, we can choose to focus on the beauty of now.
Steve Gleason
Tags: Time Beauty Think
I think about death all the time. I think that's a good thing because we're all going to die, and the only thing we can control is how we are and what we're doing in the meantime.
Steve Gleason
Tags: Time Good Death
The film 'The Diving Bell and the Butterfly,' based the book of the same name, has a line that enlightens and comforts me. The protagonist, who has lost all ability to move except one eye, discusses his role as a father. He notes, 'Even a fraction of a father is still a father.'
Steve Gleason
Tags: Me Who He
Life is difficult. Not just for me or other ALS patients. Life is difficult for everyone. Finding ways to make life meaningful and purposeful and rewarding, doing the activities that you love and spending time with the people that you love - I think that's the meaning of this human experience.
Steve Gleason